Patients with rare diseases and their life choices | Yi’ou Wang | TEDxXiguan - Healthy Tips
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Patients with rare diseases and their life choices | Yi’ou Wang | TEDxXiguan

Patients with rare diseases and their life choices | Yi’ou Wang | TEDxXiguan

#Acupuncture #DentalCare #Depression #Detoxification #Diabetes


Some people, most of the times without any bad intention, argues that one should not give birth to a child if themselves are a patient of rare diseases. But is that right? Yi’ou Wang is the Secretary-General of Illness Challenge Foundation and a patient of rare disease herself. In this talk, she takes us further on this seemingly correct reasoning until we reach some surprising conclusion. She also reminds us that there is no such thing as certainty in our lives. 2014’s Ice Bucket Challenge may be the first time rare diseases gained mass attention in China. Wang succeeded in localizing and promoting Ice Bucket Challenge in China through Weibo and China Dolls initiated by her. Along with Narada Foundation, China Dolls has established The Illness Challenge Foundation. Together they want to build a platform to transform media attention into an efficient system to combat the social injustice that patients may encounter. Their vision is to construct a society with justice, equality and love where everyone could be accepted and supported regardless of their illness or any difficulties. Wang herself is suffering from osteogenesis imperfecta. Though her figure may appear to be small, her belief is potent enough in changing the world. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx

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1Comment
  • Beadsbyu
    Posted at 04:11h, 11 January

    Please – if you're going to post a video with an English title, make sure it can be understood by English viewers – dubbed or with subtitles.